About Us

About Us

Introducing the NDSSGs Management Committee

The Management Committee take responsibility for the day to day running, planning and delivery of all events and activities.  The NDSSG Management Committee comprises of parents of children with Down Syndrome, with varying backgrounds, skills and experience.  

Co Chairperson

CharlotteHannah

Charlotte Hannah

I’m Charlotte, proud mum of two. I help chair the management committee meetings and love being part of the wider NDSSG team. I felt passionate about keeping the NDSSG going a number of years back, at a time when it reached a point that commitment was difficult and support was needed. Thankfully, bridging that gap helped keep it alive and it’s thriving again now, with a great team! I love speaking to other parents and sharing our experiences and journeys with each other. The Down Syndrome community of support is key and has helped me along the way so I want to ensure I can also do that for others.

Co Chairperson

MarieJamesGabe

Marie Evans

My name is Marie. I have two children, Gabe and James, and have been attending NDSSG events on and off since Gabe was 6 months old. It is now nice to be able to be part of the committee to be involved in the organisation of future events. I enjoy running and in 2019 I ran the London Marathon to raise money for the Down Syndrome Association.

Events Co-ordinator

Helen Coppins

I’m Helen and mum to 3 almost adult children.  My middle child Matt, is 18 and the reason we set up NDSSG almost 15 years ago!!!  I’m a fulltime carer to Matt and use my spare time to run and organise NDSSG activities and sewing keepsakes for people.  I love Nottingham Forest, spending time with family/friends/my two dogs, drinking wine and being out in the sunshine!

Website Developer

Donna Danks

Hi I’m Donna, I look after this website, Instagram and the associated email services.  My husband and I have a Beautiful 2 year old son whose name is Harley. Although we are no longer living in Nottinghamshire we have an active role in the group and can be found enjoying many of the wonderful and exciting NDSSGs events.

Tara Bradshaw Girling

Hi I’m Tara, mum to Oliver, 7 who has DS and baby Rosie. I have helped run the NDSSG since 2017 and mainly help with fundraising. I have always been really passionate about creating a DS community for Nottinghamshire, one that allows us to provide fun and essential opportunities for our children as well as a great support network for parents. In my spare time – if I get any- I enjoy Gin and spending time with friends.

Phillippa Dunham

Hi My name is Phillippa and I am mum to Poppy aged 14. I work as a TLA at a local primary school. This group was the first contact we had as a family with other parents who had a child with Downs Syndrome. It was invaluable. Just wanted to help support local families in similar situations in the way that we were helped when Poppy was born.
 

Charlie Crockford

I’m mum to George who is 1 years old. I currently work 4 days a week as a secondary school maths teacher! I decided to become a part of the committee for NDSSG as their support was valued so much after George’s diagnosis, and I want to be able to support others too. I would love to say what I like to do in my spare time, but with a 1 year old and a 3 year old, I don’t know what spare time is!

Liz Hibbett

Hi I’m Liz. I’m mum to 6 children 22, 13, 11, 8, 7 and my youngest child, Freddie, who is 9 months old and has Down syndrome. I am a hairdresser and beautician, and I also work for Center Parcs. I had a pre natal diagnosis, and NDSSG was amazing to me when I was pregnant, and have been since I had him, with advice, help and anything else I needed. So I chose to join the Committee, so I could give something back. 

Ali Jordan

Hi I’m Ali Jordan, mum to Alfie (4) and Freddie (5) step mum to Tilly (20). We had prenatal diagnosis of Down Syndrome and AVSD with Alfie. Alfie has had lots of health challenges but is overcoming them and is starting mainstream school next year. We have found the support from other families invaluable and the Nottinghamshire Downs Syndrome Support Group provides really good ways to support families and creates opportunities to come together.