Introducing the NDSSGs Management Committee
The Management Committee take responsibility for the day to day running, planning and delivery of all events and activities. The NDSSG Management Committee comprises of parents of children with Down Syndrome, with varying backgrounds, skills and experience.
I’m Charlotte, proud mum of two. I help chair the management committee meetings and love being part of the wider NDSSG team. I felt passionate about keeping the NDSSG going a number of years back, at a time when it reached a point that commitment was difficult and support was needed. Thankfully, bridging that gap helped keep it alive and it’s thriving again now, with a great team! I love speaking to other parents and sharing our experiences and journeys with each other. The Down Syndrome community of support is key and has helped me along the way so I want to ensure I can also do that for others.
My name is Marie. I have two children, Gabe and James, and have been attending NDSSG events on and off since Gabe was 6 months old. It is now nice to be able to be part of the committee to be involved in the organisation of future events. I enjoy running and in 2019 I ran the London Marathon to raise money for the Down Syndrome Association.
I’m Helen and mum to 3 almost adult children. My middle child Matt, is 18 and the reason we set up NDSSG almost 15 years ago!!! I’m a fulltime carer to Matt and use my spare time to run and organise NDSSG activities and sewing keepsakes for people. I love Nottingham Forest, spending time with family/friends/my two dogs, drinking wine and being out in the sunshine!
Tara Bradshaw Girling
Hi I’m Tara, mum to Oliver, 7 who has DS and baby Rosie. I have helped run the NDSSG since 2017 and mainly help with fundraising. I have always been really passionate about creating a DS community for Nottinghamshire, one that allows us to provide fun and essential opportunities for our children as well as a great support network for parents. In my spare time – if I get any- I enjoy Gin and spending time with friends.
I’m mum to George who is 1 years old. I currently work 4 days a week as a secondary school maths teacher! I decided to become a part of the committee for NDSSG as their support was valued so much after George’s diagnosis, and I want to be able to support others too. I would love to say what I like to do in my spare time, but with a 1 year old and a 3 year old, I don’t know what spare time is!
Hi I’m Ali Jordan, mum to Alfie (4) and Freddie (5) step mum to Tilly (20). We had prenatal diagnosis of Down Syndrome and AVSD with Alfie. Alfie has had lots of health challenges but is overcoming them and is starting mainstream school next year. We have found the support from other families invaluable and the Nottinghamshire Downs Syndrome Support Group provides really good ways to support families and creates opportunities to come together.