Author: Donna Danks

World Downs Syndrome Day 2022

It would be really helpful if you can get yourselves booked on the World Down’s Syndrome Day event that you plan to attend, as soon as possible. We have 5 amazing hub organising teams trying to get everything sorted, and they want to ensure they all have suitable activities planned for all those who are […]

NDSSG Toddler Group

In March 2020, on World Down Syndrome Day, we were going to celebrate our new initiative of giving all new babies born with DS a new baby bag. And then, instead, the whole country went into lockdown! Prior to that, although we hadn’t done the bags before, parents and babies could meet up together at […]

NDSSG Baby Group

In April 2020, NDSSG started handing out New Baby Bags to any new families we heard about in Notts. That summer, we spoke to the paediatricians at Nottingham City Hospital, and they said they would be happy to give them out to all new babies born there and at QMC. A month or so later, […]

2021 Christmas Mashup Teaser

2021 Christmas Mashup

This year, 90 members of Nottinghamshire Downs Syndrome Support Group, ranging from 2 months to 32 years old, have taken part in our Christmas song mashup video!
Thank you to everyone who took part – learning the signs, dressing up all Christmassy, filming and submitting the videos! You are all amazing!

If this doesn’t get you in the mood for Christmas, nothing will!

Christmas Party

The NDSSG annual Christmas Party is coming soon in December.  We hope as many Families as possible can attend and join in with the festive celebrations. This year we will be holding our annual Christmas Party at the Monty Hind Youth Centre in Lenton.  There will be Santa’s Grotto, lots of Party Games, a soft […]

Billy’s Story

Billy’s Story, by his mum, Becky Billy was born 12th November 2020. I had to go to my 12 week scan alone, due to Covid restrictions. I was extremely nervous as I had suffered 2 previous miscarriages. At the end of my scan the sonographer sat me up and said, “I’m very sorry there seem […]

PJ’s Story

PJ’s Story, by his mum, Rachel PJ is an amazing young man, who is now aged 20! It doesn’t seem 5 minutes since he was a tiny 2lb baby! He has the most amazing smile, cheeky grin and bright blue eyes. PJ walks with a swagger and I think he believes he rules the world. […]

Nina’s Story

Nina’s Story, by her mum, Naomi Nina has turned our life upside down – but in a most fantastic way! Her presence in the world brings joy, hope, laughter, knowledge, and personal growth to everyone she meets. So, let us go back 3 years and see how her story unfolds…I first heard that Nina had […]